{"id":1883,"date":"2025-06-09T16:59:28","date_gmt":"2025-06-09T16:59:28","guid":{"rendered":"https:\/\/apwschweiz.ch\/wordpress\/?p=1883"},"modified":"2025-07-12T12:16:16","modified_gmt":"2025-07-12T12:16:16","slug":"experience-report-kathrin","status":"publish","type":"post","link":"https:\/\/apwschweiz.ch\/en\/erfahrungsbericht-kathrin\/","title":{"rendered":"A long road to diagnosis - living with cerebral palsy"},"content":{"rendered":"<div data-elementor-type=\"wp-post\" data-elementor-id=\"1883\" class=\"elementor elementor-1883\" data-elementor-post-type=\"post\">\n\t\t\t\t<div class=\"elementor-element elementor-element-6973e45 e-flex e-con-boxed e-con e-parent\" data-id=\"6973e45\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-ebb9126 elementor-widget elementor-widget-heading\" data-id=\"ebb9126\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">From birth to diagnosis<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-0a273c6 e-con-full e-flex e-con e-child\" data-id=\"0a273c6\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-34d70d8 elementor-widget__width-initial elementor-widget-mobile__width-inherit elementor-widget elementor-widget-text-editor\" data-id=\"34d70d8\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\tOn December 14, 1992, Kathrin came into the world as a longed-for child. I felt very good during the pregnancy. I didn't have any major issues and felt comfortable the entire time. Kathrin was already a very quiet child during this time. She didn't move often or strongly. Sometimes, I wouldn't feel her for a long time. But each time I started to worry, she would respond with a kick or a punch, as if to say, \"I'm still here.\".\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-77ace23 elementor-widget__width-initial elementor-widget-mobile__width-inherit elementor-widget elementor-widget-image\" data-id=\"77ace23\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"350\" height=\"350\" src=\"https:\/\/apwschweiz.ch\/wp-content\/uploads\/2025\/06\/Kathrin-Bossart-Erfahrungsbericht-APW-Schweiz.jpg\" class=\"attachment-large size-large wp-image-1928\" alt=\"Kathrin Bossart\" srcset=\"https:\/\/apwschweiz.ch\/wp-content\/uploads\/2025\/06\/Kathrin-Bossart-Erfahrungsbericht-APW-Schweiz.jpg 350w, https:\/\/apwschweiz.ch\/wp-content\/uploads\/2025\/06\/Kathrin-Bossart-Erfahrungsbericht-APW-Schweiz-100x100.jpg 100w, https:\/\/apwschweiz.ch\/wp-content\/uploads\/2025\/06\/Kathrin-Bossart-Erfahrungsbericht-APW-Schweiz-300x300.jpg 300w, https:\/\/apwschweiz.ch\/wp-content\/uploads\/2025\/06\/Kathrin-Bossart-Erfahrungsbericht-APW-Schweiz-150x150.jpg 150w\" sizes=\"(max-width: 350px) 100vw, 350px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f270f4d elementor-widget elementor-widget-text-editor\" data-id=\"f270f4d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\n\n\nKathrin was born by caesarean section as a breech baby. Her Apgar scores were very good. Only her sucking reflex did not work at all. I pumped the breast milk and gave it to her with the bottle. I kept this up for six weeks, then I had the feeling that all I was doing was pumping and lapping. After that I switched to normal bottle feeding. Kathrin was very easy to look after. She slept a lot, actually only slept. When I worriedly told other mothers about this, the only response was always that I was glad she was sleeping so much. I always felt that this was not quite normal. Sometimes I even had to wake her up to give her a bottle, otherwise she wouldn't have drunk anything. At the monthly check-ups with the maternity nurse, everything was fine for the first eight months. Kathrin developed very slowly. But still in a way that was acceptable. Then there was a standstill and the attentive nurse sent me to the family doctor for further clarification. After another four months, the GP referred me to the St. Gallen Children's Hospital. In the meantime, I was pregnant again.\n\n\nOne afternoon in February, we were allowed to go to the children's hospital for an initial check-up. Before that, however, a proper pregnancy check-up with the gynaecologist was on the agenda. He listened to the heartbeat. As I hadn't heard them the first time, he looked for them again for me. Suddenly he was taken aback and asked me to move to the ultrasound room. I was worried and terrible thoughts ran through my head. After some searching, he found the embryo and everything was fine. I was reassured, even though I hadn't seen the heart myself. My gynecologist looked for it again to show it to me. Suddenly he asked: \u201cDo you know what I've just seen?\u201c I said no, but I already suspected something. There are two of them! They're having twins! Luckily I was already lying on the bed. I rode home on my bike, completely upset, and told my husband the news.\n\n\nI was glad that my husband came with me to the children's hospital. The doctor examined Kathrin and then made the diagnosis: cerebral palsy. The first thing I wanted to know was how hereditary it was. The doctor reassured me and said I didn't need to worry about the twins. The cause in Kathrin's case could have been a small brain haemorrhage. She prescribed physiotherapy for her. Either at the children's hospital, which the doctor recommended, or at a branch in Gossau. We chose the children's hospital for the therapy. When I asked for further clarification, she said that the brain haemorrhage could be so small that it wouldn't be visible. In addition, Kathrin would have had to be anaesthetized so that she would lie very still. As this would not have changed the therapy, we decided not to have any further examinations. From that day on, nothing in my life was the same again.\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-d27e000 elementor-widget elementor-widget-text-editor\" data-id=\"d27e000\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\tby Barbara Bossart\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"<p>From the inconspicuous pregnancy to the diagnosis: a mother talks about the first months of her daughter Kathrin's life, her early observations - and the moment when the diagnosis of cerebral palsy changed everything.<\/p>","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[46],"tags":[],"kurstyp":[],"class_list":["post-1883","post","type-post","status-publish","format-standard","hentry","category-erfahrungsberichte"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Diagnose cerebrale L\u00e4hmung bei Kathrin | APW Schweiz<\/title>\n<meta name=\"description\" content=\"Erfahrungsbericht einer Mutter: Von der Geburt bis zur Diagnose einer cerebralen L\u00e4hmung \u2013 und wie sich das Leben schlagartig ver\u00e4nderte.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/apwschweiz.ch\/en\/experience-report-kathrin\/\" \/>\n<meta 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